Thursday, August 5, 2010

Connecting with a GIST network

Wow - I talked with a women this morning from Life Raft. I am now on a list serv for people diagnosis with GIST and there maybe a support group here in NYC. I will wait and see. It is a good place to ask questions and process information and talk about other stuff going on too. So this brings me to following up on yesterday's post and a question to add to the others to ask my doctor.

Should I take gleevac as a preventative for the recurrance of the GIST.

The woman I spoke with will send me some information about % of recurrance and taking gleevac.

I am both excited and overwhelmed - in a good way - to have others to talk to who have the same cancer I do. I also feel a relieved too. I am feeling strong, courageous and hopeful.

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