Saturday, August 7, 2010

Needing to vent

Okay so I am still really happy that I found this listserv for GIST and making some connections, but something has already happened. Some man in Hawii whom I will never meet basically writes to question my treatment plan. I am insenced! Pissed off! If I could I would rip him a new a-- hole. How disrespectful and hurtful. I just got to get this out of my system. I have already sent back a polite put pointed email - off list - pointing out to him that he is making assumptions about my treatment without knowing the rest of my story. Okay - he crossed a line - he made assupmtions about me without asking for my story first and in doing do indicated that my treatment was wrong. I wrote him back that not only am I seeing GIST specialists in both my oncologist and surgeon, but that I have also done my research about gleevac and my post-op follow up and that I was comfortable following the advice of my doctors and for him to please respect the choice my doctors and I have made. I also had to point out to him that there is more than one good hospital that treats cancer very well in NYC and that one hospital does not have to be Sloan Kettering. Not only did his assumption hurt but by making those assumptions that my treatment was wrong was an attempt to cast doubt on the care and treatment I have gotten. In my book no-one has the right to cast doubt about my choice of treatment - no matter what disease I am suffering from.

ok. now I am done.....back to being happy!

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