a website that deals with GIST

Friends,
Here is a website that deals with GIST - for your information

http://www.liferaftgroup.org/index.html

From their website:

Prior to 2001, surgery was the only successful treatment option for GIST. However, even for patients whose tumors are completely removed and have microscopically clean margins, there is a high probability of local tumor recurrence in the abdomen. Reports of median time to recurrence vary widely (from 7 months to 2 years)1 and a large retrospective study reported a median time to recurrence of 19 months.2 However, documented GIST recurrence over 20 years after primary surgery underscores the need for long-term follow-up of patients after apparently successful tumor resection.

Right now this is depressing me. It is something to ask the surgeon or the oncologist - if I go back to him. I am struggling with how to live my life between all those follow up tests. I know I sound dramatic and I am not there yet and this isn't the here and now - but right now my courage is failing me.

Now the fight in me says - work on my bucket list - first I have to write one up - that should be fun!